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Inclusive Design for Long
Covid and Brain Fog
Ted Drake, Intuit
1.4 M - population in San Diego
942k reported COVID: 67%*
235,500 experienced Long-COVID/Brain Fog: 25%
Common COVID Long Haul (PASC) Symptoms
● Chest
○ Shortness of breath
○ Long lasting cough
○ Sore throat and difficulties
swallowing
● Heart
○ Blood clotting (deep vein
thrombosis and pulmonary
embolism)
○ Chest pains
○ Heartburn
○ Palpitations
○ New onset of diabetes and
hypertension
● Other
○ Blurred Vision
○ Changes in oral health
○ Diarrhea and bouts of vomiting
○ Extreme fatigue
○ Kidney problems
○ Tinnitus
○ Low grade fever
● Pain
○ Headaches
○ Joint pain
○ Muscle weakness
○ Needle pains in arms and legs
Long Haul Cognitive and Neurologic Symptoms
● Anosmia, Parosmia, Phantosmia (change in sense of smell and taste)
● Anxiety and Panic Attacks
● Changes in mood, sometimes accompanied by depression and
other mental health problems
● Inability to concentrate (brain fog)
● Memory lapses
● Numbness, Tingling, Vibrations
● PTSD
● Sleep difficulties, Insomnia
Gareth Ford Williams (BBC, Ab11y, Design Leader)
Cognitively I think I am still struggling. I'm definitely not as sharp as I was 2 years ago.
Design flaws and issues that I would I would have expected me to spot
quickly and work-through, I am still spotting them, but not as quickly and
designing solutions or research methodologies. It‘s definitely a lot harder
than it used to be.
I'm still capable, just a lot slower, which can be frustrating.
It's funny though because trying to remember the me from 2 years ago is becoming
increasingly more difficult...
Anxiety, Panic Attacks, and PTSD
"Knowing how terrible it makes you feel and not knowing when all of this
will end or what will happen to you next is the most terrifying part of this
illness," she told Business Insider. "We are the guinea pigs. We are the ones
that have to figure it out for everyone else. I have never felt so alone or
scared."
- Martha Barrera
- 30% diagnosed with neurological or psychological symptoms
- Many long COVID patients report dismissive attitudes by medical
providers, which can make seeking care—whether psychological or
physical—even more challenging
Cognitive Design Basics
Affordance
Affordance:
Affordances represent the multitude of possibilities
available to any person or animal in their environment.
Perceived Affordance:
Perceived affordances describe the relationships that
actors perceive within an environment.
False affordance
An element in the digital space affords something else that is
unexpected — like turning on your lights instead of the TV with the TV
remote – or no action at all.
Signifiers
A "signifier" is some sort of indicator, some signal in
the physical or social world, that can be interpreted
meaningfully.
Affordance and Signifier
The doors have the affordance of
opening in one direction.
Each side has different shaped
handles.
● Which signifier suggests a pull
direction?
● Which signifier suggests a push
direction?
What if they were switched?
Loan amount input - QuickBooks Capital
“As a rule, people don’t like to puzzle over things.
They enjoy puzzles in their place– when they want to
be entertained or diverted or challenged– but not
when they’re trying to find out what time their dry
cleaner closes.”
–Steve Krug, Don’t Make Me Think
Design for Long COVID
and Brain Fog
When technology communicates and behaves well,
it enables you to do what you want to, on your terms.
It communicates in ways that allow you to focus, and
achieve the level of concentration you need to accomplish a
task.
- Respecting Focus: A behavior guide for Intelligent Systems
(Microsoft)
Cognitive Load
Cognitive load is the amount of working memory or short-term memory
someone is using.
Minimizing the cognitive load it takes to use your product or service
makes it more accessible for people with cognitive disabilities.
How can we improve the product experience?
● Simple instead of Complex
● Easy to understand content.
● Which content actually serves a purpose. Leave out all the rest.
● Intuit’s readability target is 5th to 8th grade.
● Use videos and illustrations to support content
● Clear affordances and signifiers
● Use headings and lists to make content scannable
● Consistent layout
● Label icons with visible text
● Don’t Make Me Think
Design for Short Term Memory
● Focus on Recognition instead of Recall
● Highlight what the user clicks on
● Provide tools that aid in decision making
● Have the system do some of the work for the user
● Response time must be fast
● Change the color of visited links
● Provide help in context instead of external resource
WCAG 3.0 and COGnitive Accessibility Guidelines
Cognitive and Learning Disabilities Accessibility Task Force (Coga TF)
UX Principles that include Cognitive Accessibility (Ab11y)
COGA: Cognitive Accessibility User Research
Making Content Usable for People with Cognitive and Learning
Disabilities
Questions?

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Inclusive design for Long Covid

  • 1. Inclusive Design for Long Covid and Brain Fog Ted Drake, Intuit
  • 2. 1.4 M - population in San Diego 942k reported COVID: 67%* 235,500 experienced Long-COVID/Brain Fog: 25%
  • 3. Common COVID Long Haul (PASC) Symptoms ● Chest ○ Shortness of breath ○ Long lasting cough ○ Sore throat and difficulties swallowing ● Heart ○ Blood clotting (deep vein thrombosis and pulmonary embolism) ○ Chest pains ○ Heartburn ○ Palpitations ○ New onset of diabetes and hypertension ● Other ○ Blurred Vision ○ Changes in oral health ○ Diarrhea and bouts of vomiting ○ Extreme fatigue ○ Kidney problems ○ Tinnitus ○ Low grade fever ● Pain ○ Headaches ○ Joint pain ○ Muscle weakness ○ Needle pains in arms and legs
  • 4. Long Haul Cognitive and Neurologic Symptoms ● Anosmia, Parosmia, Phantosmia (change in sense of smell and taste) ● Anxiety and Panic Attacks ● Changes in mood, sometimes accompanied by depression and other mental health problems ● Inability to concentrate (brain fog) ● Memory lapses ● Numbness, Tingling, Vibrations ● PTSD ● Sleep difficulties, Insomnia
  • 5. Gareth Ford Williams (BBC, Ab11y, Design Leader) Cognitively I think I am still struggling. I'm definitely not as sharp as I was 2 years ago. Design flaws and issues that I would I would have expected me to spot quickly and work-through, I am still spotting them, but not as quickly and designing solutions or research methodologies. It‘s definitely a lot harder than it used to be. I'm still capable, just a lot slower, which can be frustrating. It's funny though because trying to remember the me from 2 years ago is becoming increasingly more difficult...
  • 6. Anxiety, Panic Attacks, and PTSD "Knowing how terrible it makes you feel and not knowing when all of this will end or what will happen to you next is the most terrifying part of this illness," she told Business Insider. "We are the guinea pigs. We are the ones that have to figure it out for everyone else. I have never felt so alone or scared." - Martha Barrera - 30% diagnosed with neurological or psychological symptoms - Many long COVID patients report dismissive attitudes by medical providers, which can make seeking care—whether psychological or physical—even more challenging
  • 8.
  • 10. Affordance: Affordances represent the multitude of possibilities available to any person or animal in their environment. Perceived Affordance: Perceived affordances describe the relationships that actors perceive within an environment.
  • 11. False affordance An element in the digital space affords something else that is unexpected — like turning on your lights instead of the TV with the TV remote – or no action at all.
  • 12. Signifiers A "signifier" is some sort of indicator, some signal in the physical or social world, that can be interpreted meaningfully.
  • 13. Affordance and Signifier The doors have the affordance of opening in one direction. Each side has different shaped handles. ● Which signifier suggests a pull direction? ● Which signifier suggests a push direction? What if they were switched?
  • 14. Loan amount input - QuickBooks Capital
  • 15. “As a rule, people don’t like to puzzle over things. They enjoy puzzles in their place– when they want to be entertained or diverted or challenged– but not when they’re trying to find out what time their dry cleaner closes.” –Steve Krug, Don’t Make Me Think
  • 16. Design for Long COVID and Brain Fog
  • 17. When technology communicates and behaves well, it enables you to do what you want to, on your terms. It communicates in ways that allow you to focus, and achieve the level of concentration you need to accomplish a task. - Respecting Focus: A behavior guide for Intelligent Systems (Microsoft)
  • 18. Cognitive Load Cognitive load is the amount of working memory or short-term memory someone is using. Minimizing the cognitive load it takes to use your product or service makes it more accessible for people with cognitive disabilities.
  • 19. How can we improve the product experience? ● Simple instead of Complex ● Easy to understand content. ● Which content actually serves a purpose. Leave out all the rest. ● Intuit’s readability target is 5th to 8th grade. ● Use videos and illustrations to support content ● Clear affordances and signifiers ● Use headings and lists to make content scannable ● Consistent layout ● Label icons with visible text ● Don’t Make Me Think
  • 20.
  • 21. Design for Short Term Memory ● Focus on Recognition instead of Recall ● Highlight what the user clicks on ● Provide tools that aid in decision making ● Have the system do some of the work for the user ● Response time must be fast ● Change the color of visited links ● Provide help in context instead of external resource
  • 22. WCAG 3.0 and COGnitive Accessibility Guidelines Cognitive and Learning Disabilities Accessibility Task Force (Coga TF) UX Principles that include Cognitive Accessibility (Ab11y) COGA: Cognitive Accessibility User Research Making Content Usable for People with Cognitive and Learning Disabilities

Editor's Notes

  1. Lightning talk for San Diego Meetup
  2. As of July 28, 2022 - 942k Total Cases Reported in San Diego - this includes people who have been infected multiple times The population of San Diego is 1.4 million 67% of San Diegans have had COVID. The 2019 census estimates 26% of US citizens have a disability. With that percentage, San Diego would have had 364,000 people with a disability. Long COVID has almost doubled that number. https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html 25% of people with COVID have Long Term Covid/Brain Fog 235,500 San Diegans have been experienced Long Term COVID/Brain Fog ME/CFS Chronic fatigue syndrome: Gradually figuring out what's wrong - Harvard Health Qualitative study “I can't cope with multiple inputs”: Qualitative study of the lived experience of 'brain fog' after Covid-19 | medRxiv Cognitive impact Cognitive deficits in people who have recovered from COVID-19 - eClinicalMedicine Statistics on Covid recovery: https://www.statista.com/statistics/1087466/covid19-cases-recoveries-deaths-worldwide/ Qualitative study https://www.medrxiv.org/content/10.1101/2021.08.07.21261740v1.full-text
  3. https://www.cognitivefxusa.com/blog/post-covid-brain-fog-treatment
  4. Persistent neurologic symptoms and cognitive dysfunction in non-hospitalized Covid-19 “long haulers” https://onlinelibrary.wiley.com/doi/10.1002/acn3.51350
  5. Quote from private conversation with Gareth Ford Williams and Ted Drake Gareth’s Little book of accessibility: https://www.youtube.com/watch?v=ikk-v81dxEU
  6. Coronavirus patients are suffering from anxiety and panic attacks. Experts worry the psychological effects could linger. https://www.businessinsider.com/coronavirus-patients-and-survivors-suffer-from-panic-attacks-anxiety-2020-4 https://www.apa.org/monitor/2021/07/treating-long-covid
  7. Norman Doors are doors that defy expectations, should I push, pull, slide, or twist? The confusion is caused by the affordance (push or pull) not matching the signifier (door handle that implies the direction).
  8. photo: strong affordance by Nicolas Nova: https://www.flickr.com/photos/nnova/3457507532/
  9. What’s the difference between affordance and signifier: https://ux.stackexchange.com/questions/94265/whats-the-difference-between-the-terms-affordances-and-signifiers Foundations of Affordances, by Andrew Maier: http://www.uxbooth.com/articles/foundations-of-affordances/ What’s the difference between affordance and signifier: https://ux.stackexchange.com/questions/94265/whats-the-difference-between-the-terms-affordances-and-signifiers Foundations of Affordances, by Andrew Maier: http://www.uxbooth.com/articles/foundations-of-affordances/
  10. 6 types of digital affordance that impact your UX, by Paula Borowska: https://www.webdesignerdepot.com/2015/04/6-types-of-digital-affordance-that-impact-your-ux/
  11. Loan amount input from QuickBooks Capital. what is the affordance What is the signifier What is a possible false affordance?
  12. https://www.amazon.com/Dont-Make-Me-Think-Usability/dp/0321344758
  13. Respecting Focus: https://www.microsoft.com/design/assets/inclusive/InclusiveDesign_RespectingFocus.pdf
  14. https://ux.shopify.com/designing-for-cognitive-disabilities-b2933d58c278
  15. Intuit Content Design - readability https://contentdesign.intuit.com/accessibility-and-inclusion/aim-for-5th-to-8th-grade-readability/ Designing for Cognitive Disabilities (Shopify) https://ux.shopify.com/designing-for-cognitive-disabilities-b2933d58c278 Affordances and Signifiers https://medium.com/@h_locke/affordances-and-signifiers-82bd6f50fc1a
  16. https://www.youtube.com/watch?v=AsSAOr4L73E
  17. https://www.nngroup.com/videos/short-term-memory-ui-design/?lm=ux-and-covid-19&pt=youtubevideo https://www.nngroup.com/articles/short-term-memory-and-web-usability/
  18. UX Principles that include Cognitive Accessibility: https://www.ab11y.com/articles/ux-principles-that-include-cognitive-accessibility/ Cognitive Accessibility User Research https://w3c.github.io/coga/user-research/ Distraction Issue papers: https://w3c.github.io/coga/issue-papers/distractions.html Making Content Usable for People with Cognitive and Learning Disabilities https://www.w3.org/TR/coga-usable/