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Crowd vs. Experts
Who to trust for health information?




      Alexandra Carmichael, Mar 2009
I’m a panelist for the Great Debate




               “Wiki vs. Expert”:
What's the best approach to knowledge creation?
The Lineup:

Experts       vs.         Users




                        Slig
                            htly
                                   ske
                                      we
                                         d?
My Reaction:




Help!




                       OK, deep breath.
I asked my 1300          /         friends:

 Who do you trust for health information?
Lots of replies and discussion from:




                                social media advocates
patients

                  doctors


                                      regular folks
  self-trackers
Theme #1: Who is an Expert?




            Experts               Patients




Experts are not                    But not all patients
necessarily MDs                       are experts

                  @ePatientDave, health trackers
Theme #2: What kind of patients?


  Chronic                                 Acute



Patients have valuable            Patients don’t have
expertise to advise or            as much expertise,
complement doctors               rely more on doctors



               Julio Bonis Sanz, MD PhD
Theme #3: Are statistics better than experts?



     This book                  says YES!




Experts are good at        Linear statistical models
 defining measures               are better at
                              making predictions
Theme #4: Can patients run their own clinical trials?




                ALS Lithium study -
      patients self-tracking at PatientsLikeMe
So what’s the answer? Crowd or experts?

1. It depends.

2. Transparent collaboration is a start.

3. Deep breathing is always good. :)
Other themes, ideas, who-to-trust thoughts?
               Write to me!




       alexandra@curetogether.com
          twitter: @accarmichael

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Crowd Vs. Experts - who to trust for health information?

  • 1. Crowd vs. Experts Who to trust for health information? Alexandra Carmichael, Mar 2009
  • 2. I’m a panelist for the Great Debate “Wiki vs. Expert”: What's the best approach to knowledge creation?
  • 3. The Lineup: Experts vs. Users Slig htly ske we d?
  • 4. My Reaction: Help! OK, deep breath.
  • 5. I asked my 1300 / friends: Who do you trust for health information?
  • 6. Lots of replies and discussion from: social media advocates patients doctors regular folks self-trackers
  • 7. Theme #1: Who is an Expert? Experts Patients Experts are not But not all patients necessarily MDs are experts @ePatientDave, health trackers
  • 8. Theme #2: What kind of patients? Chronic Acute Patients have valuable Patients don’t have expertise to advise or as much expertise, complement doctors rely more on doctors Julio Bonis Sanz, MD PhD
  • 9. Theme #3: Are statistics better than experts? This book says YES! Experts are good at Linear statistical models defining measures are better at making predictions
  • 10. Theme #4: Can patients run their own clinical trials? ALS Lithium study - patients self-tracking at PatientsLikeMe
  • 11. So what’s the answer? Crowd or experts? 1. It depends. 2. Transparent collaboration is a start. 3. Deep breathing is always good. :)
  • 12. Other themes, ideas, who-to-trust thoughts? Write to me! alexandra@curetogether.com twitter: @accarmichael