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Designing for People
 with Cognitive Disabilities:
How Can the UX Community
           Help?


        Yulia Nemchinova
     Northrop Grumman Corporation
           October 19, 2012
        User Focus Conference
Who Has Cognitive Disabilities
   Seven percent in the US have some
    type of cognitive, mental or emotional
    impairment (Census 2010)




                                             2
Types of Cognitive Disabilities

  Learning and language disabilities,
   including dyslexia
  Attention disorders
  Traumatic brain injuries (TBI)
  Developmental impairments, including
   mental retardation, autism, cerebral
   palsy, Down Syndrome
  Cognitive issues related to aging



                                          3
Types of Functional Impact
     Executive functions
     Memory
     Attention
     Visual and spatial perception
     Language and reading
     Mathematical thinking
     Emotional control, expression,
      understanding
     Speed of reasoning
     Solving new problems
     Solving problems based on experience
                                             4
When Users Encounter
Obstacles…
   Lack of confirmation that their
    action was correct
   Cannot find and review features
   Cannot recover from errors
   Cannot find landmarks
   Do not have enough time to
    complete tasks
   Cannot save their work at any
    time…

                                      5
When Users Encounter
Obstacles…
   It is a work around for most
    users
   It is a real showstopper for many
    users with cognitive impairments




                                        6
The Accessibility Research
Landscape
 Blindness remains the priority for
  accessibility researchers
 Lack of research on the usability
  engineering methods suitable for users
  with cognitive disabilities
 Limited representation of cognitive
  impairments within the accessibility
  community
 Very little testing has been conducted


                                           7
Why Are We So Behind?
Cognitive impairments are often:
 Invisible
 Difficult to diagnose
 Not universally defined
 Not willingly disclosed




                                   8
Needs Assessment
“When it comes to needs assessment
more often than not people with
disabilities prefer not to disclose it or they
don‟t know what their disability is.”

                          Nancie Payne, PhD
          Consultant, Payne & Associates, Inc.




                                                 9
Obstacles in Designing for
Cognitive
 Complexity of cognitive issues
 Challenging to find a universal
  approach
 No automated validation tools exist,
  and it is unlikely a tool could substitute
  for human evaluation




                                               10
Web Accessibility Evaluation Tool
 WAVE: a grant project at WebAim
 Idea: to „embed‟ programmatic
  solutions into a single tool
 Issue: supporting one disability
  contradicted support for another;
  providing images to help with language
  disabilities distracted users with
  attention disorders


                                           11
WAVE Project
 We no longer think that the best solution for
 users with cognitive disabilities is to put
 issues of cognitive load and web
 accessibility into the hands of web
 developers. While they have an important
 role in helping, the need to HIGHLY
 individualize to the unique user is too great
 to be practical.

                            Cyndi Rowland, PhD
     Executive Director WebAIM; National Center on
       Disability and Access to Education Center for
      Persons with Disabilities, Utah State University
                                                         12
Curb Cut Access




                  13
Support Assistive Technologies
  Screen readers
  Plug-ins such as BrowseAloud by
   TextHelp
  Read&Write by TextHelp
  VoiceOver for iPhone and comparative
   Android applications




                                          14
Universal Design
  Aiming to assist most users
  Can be incorporated into existing
   systems without having to design
   separate version




                                       15
Universal Design: Navigation
 Consistent navigation and design on
  every page
 Flat navigational architecture
 Functioning Back button
 Limited the number of links per page
 Standard behavior for links




                                         16
Universal Design: Language &
Literacy
   Clear and simple text
   Newspaper style
   6-8 reading level with a simple
    sentence structure
   Short pages, paragraphs and
    sentences
   Single column of content
   Avoid navigational links at the right,
    which can be distractive

                                             17
Mobile or Slimmed Down Access

   Direct access to content
   Limited content to process
   Availability on multiple electronic
    devices

                              Clayton Lewis, PhD
          Professor of Computer Science, Scientist in
           Residence, Coleman Institute for Cognitive
                  Disabilities, University of Colorado


                                                     18
Usability Testing

   Usability studies with cognitively
    impaired people are extremely rare
   User testing is needed
   There is no substitution for actual
    users with disabilities




                                          19
The Future: GPII
  Global Public Inclusive Infrastructure
   (GPII)
  Video about GPII:
   http://gpii.net/node/108




                                            20
Thank you!




             21
References:
Bergel, M., Chadwick-Dias, A., & Tullis, T. (2005). Leveraging Universal Design
in a Financial Services Company. Accessibility and Computing, 82.

Bodine, C., & Lewis, C. (2004). Rehabilitation Engineering Research Center
(RERC) for the Advancement of Cognitive Technologies. Accessibility and
Computing, 80.

Cole, E. (2011). Lessons Learned and Challenges Discovered in Developing
Cognitive Technology for Individuals with Brain Injury. Proceeding of CHI 2011.

Czaja, S. J., Gregor, P., & Hanson, V. L. (2009). Introduction to the special
issue on aging and information technology. ACM Trans. Access. Comput, 4.

Fernando, S., Elliman, T., Money, A., & Lines, L. (2009). Age Related Cognitive
Impairments and Diffusion of Assistive Web-Base Technologies. Universal
Access in HCI, Part I, HCII 2009 (pp. 353-360). Springer-Verlag Berlin
Heidelberg.



                                                                                  22
References (contd.):
Francik, E., Levine, S., Tremain, S., Roberts, E., & Bayha, B. (1999).
Telecommunications Problems and Design Strategies for People with Cognitive
Disabilities. Annotated Bibliography and Research Recommendations, World
Institute on Disability.

Gordon, W. A., & Nash, J. (2005). The Interface Between Cognitive
Impairments and Access to Information Technology.

Gregor, P., & Dickinson, A. (2006). Cognitive difficulties and access to
information systems – an interaction design perspective.

Hagood, K., Moore, T., Pierre, T., Messamer, P., Ramsberger, G., & Lewis, C.
(2010). Naming Practice for People with Aphasia in a Mobile Web Application:
Early User Experience. ASSETS: ACM Conference on Assistive Technologies,
273-274.

Hanson, V. L. (2009). Cognition, Age, and Web Browsing. Universal Access in
HCI, Part I, HCII 2009, (pp. 245-250). Springer-Verlag Berlin Heidelberg.


                                                                               23
References (contd.):
Jansche, M., Feng, L., & Huenerfauth, M. (2010). Reading Difficulty in Adults
with Intellectual Disabilities: Analysis with a Hierarchical Latent Trait Model.
ASSETS’10,. Orlando, Florida, USA.

Judson, A., & Nicolle, C. (2004). Internet accessibility for people who use
augmentative and alternative communication. Conference Proceedings --
International Society for Augmentative & Alternative Communication, 181-186.

Keates, S., Kozloski, J., & Varker, P. (2009). Cognitive Impairments, HCI and
Daily Living. Universal Access in HCI, Part I, HCII 2009 (pp. 366-374).
Springer-Verlag Berlin Heidelberg.

Lepistö, A., & Ovaska, S. (2004). Usability evaluation involving participants with
cognitive disabilities. NordiCHI '04. Tampere, Finland.

Lewis, C. Cognitive and Learning Impairments.

Lewis, C. (2008). Cognitive Disabilities. In The Universal Access Handbook.


                                                                                     24
References (contd.):
Lewis, C. (2006, May-June). HCI and Cognitive Disabilities. Interactions , pp.
14-15.

Lewis, C. HCI for People with Cognitive Disabilities.

Lewis, C. (2006). Simplicity in cognitive assistive technology: a framework and
agenda for research. Univ Access Inf Soc (pp. 351-361). Springer-Verlag.

Moffatt, K., & Davies, R. (2004). The Aphasia Project: Designing technology for
and with individuals who have aphasia. Accessibility and Computing, 80, pp.
11-17.

Poncelas, A., & Murphy, G. (2007). Accessible Information for People with
Intellectual Disabilities: Do Symbols Really Help? Journal of Applied Research
in Intellectual Disabilities. 20, pp. 466-474. BILD Publications.

Poulson, D., & Nicolle, C. (2004). Making the Internet accessible for people
with cognitive and communication Impairments. Universal Access in the
Information Society, 3(1), 48-56.
                                                                                  25
References (contd.):
Redish, J. (., & Chisnell, D. (2004). Designing Web Sites for Older Adults: A
Review of Recent Literature. AARP.

Rowland, C. (2010). Accessibility: The Need for Champions and Awareness in
Higher Education. Educause Review, 45(6), 12.

Rowland, C. (2010). Transforming the Institution. Educause Review, 45(6), 14.

Savidis, A., & Stephanidis, C. (2004). Developing Inclusive e-Learning and e-
Entertainment to Effectively Accommodate Learning Difficulties., (pp. 42-54).

Solheim, I. (2009). Adaptive User Interfaces: Benefit or Impediment for Lower-
Literacy Users? Universal Access in HCI, Part II, HCII 2009 (pp. 758-765).
Springer-Verlag Berlin Heidelberg.

Summers, K., & Summers, M. (2005). Reading and Navigational Strategies of
Web Users with Lower Literacy Skills. Proceedings of the American Society for
Information Science and Technology, 42.


                                                                                 26
References (contd.):
Vigouroux, N., Rumeau, P., Vella, F., & Vellas, B. (2009). Studying Point-Select-
Drag Interaction Techniques for Older People with Cognitive Impairment.
Universal Access in HCI, Part I, HCII 2009 (pp. 422-428). Springer-Verlag
Berlin Heidelberg.

Walser, K., Quesenbery, W., & Swierenga, S. (2008). Designing for Cognitive
Disabilities. UPA 2008 – The Many Faces of User Experience. Baltimore,
Maryland, USA.

WebAIM. (n.d.). Cognitive and Learning Disabilities Literature Review.
Retrieved from WebAIM Web Accessibility in Mind:
http://webaim.org/projects/steppingstones/litreviewsummary

WebAIM. (n.d.). Steppingstones Project on Web Accessibility and Cognitive
Disabilities in Education. Retrieved from WebAIM Web Accessibility in Mind:
http://webaim.org/projects/steppingstones/steppingstones




                                                                                    27

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The Grace Project. Accessibility and Computing, 80, pp. 18-25.Sloan, D., Gregor, P., Rowan, M., & Booth, P. (2005). Designing for OlderUsers: A Case Study in the Use of Cognitive Walkthrough. Universal Access inHCI, Part I, HCII 2005 (pp. 534-543). Springer-Verlag Berlin Heidelberg.Sloan, D., Rowan, M., & Gregor, P. (2006). Older Adults' Use of and Learningto Use Computers. Universal Access in HCI, Part I, HCII 2006 (pp. 642-647).Springer

  • 1. Designing for People with Cognitive Disabilities: How Can the UX Community Help? Yulia Nemchinova Northrop Grumman Corporation October 19, 2012 User Focus Conference
  • 2. Who Has Cognitive Disabilities  Seven percent in the US have some type of cognitive, mental or emotional impairment (Census 2010) 2
  • 3. Types of Cognitive Disabilities  Learning and language disabilities, including dyslexia  Attention disorders  Traumatic brain injuries (TBI)  Developmental impairments, including mental retardation, autism, cerebral palsy, Down Syndrome  Cognitive issues related to aging 3
  • 4. Types of Functional Impact  Executive functions  Memory  Attention  Visual and spatial perception  Language and reading  Mathematical thinking  Emotional control, expression, understanding  Speed of reasoning  Solving new problems  Solving problems based on experience 4
  • 5. When Users Encounter Obstacles…  Lack of confirmation that their action was correct  Cannot find and review features  Cannot recover from errors  Cannot find landmarks  Do not have enough time to complete tasks  Cannot save their work at any time… 5
  • 6. When Users Encounter Obstacles…  It is a work around for most users  It is a real showstopper for many users with cognitive impairments 6
  • 7. The Accessibility Research Landscape  Blindness remains the priority for accessibility researchers  Lack of research on the usability engineering methods suitable for users with cognitive disabilities  Limited representation of cognitive impairments within the accessibility community  Very little testing has been conducted 7
  • 8. Why Are We So Behind? Cognitive impairments are often:  Invisible  Difficult to diagnose  Not universally defined  Not willingly disclosed 8
  • 9. Needs Assessment “When it comes to needs assessment more often than not people with disabilities prefer not to disclose it or they don‟t know what their disability is.” Nancie Payne, PhD Consultant, Payne & Associates, Inc. 9
  • 10. Obstacles in Designing for Cognitive  Complexity of cognitive issues  Challenging to find a universal approach  No automated validation tools exist, and it is unlikely a tool could substitute for human evaluation 10
  • 11. Web Accessibility Evaluation Tool  WAVE: a grant project at WebAim  Idea: to „embed‟ programmatic solutions into a single tool  Issue: supporting one disability contradicted support for another; providing images to help with language disabilities distracted users with attention disorders 11
  • 12. WAVE Project We no longer think that the best solution for users with cognitive disabilities is to put issues of cognitive load and web accessibility into the hands of web developers. While they have an important role in helping, the need to HIGHLY individualize to the unique user is too great to be practical. Cyndi Rowland, PhD Executive Director WebAIM; National Center on Disability and Access to Education Center for Persons with Disabilities, Utah State University 12
  • 14. Support Assistive Technologies  Screen readers  Plug-ins such as BrowseAloud by TextHelp  Read&Write by TextHelp  VoiceOver for iPhone and comparative Android applications 14
  • 15. Universal Design  Aiming to assist most users  Can be incorporated into existing systems without having to design separate version 15
  • 16. Universal Design: Navigation  Consistent navigation and design on every page  Flat navigational architecture  Functioning Back button  Limited the number of links per page  Standard behavior for links 16
  • 17. Universal Design: Language & Literacy  Clear and simple text  Newspaper style  6-8 reading level with a simple sentence structure  Short pages, paragraphs and sentences  Single column of content  Avoid navigational links at the right, which can be distractive 17
  • 18. Mobile or Slimmed Down Access  Direct access to content  Limited content to process  Availability on multiple electronic devices Clayton Lewis, PhD Professor of Computer Science, Scientist in Residence, Coleman Institute for Cognitive Disabilities, University of Colorado 18
  • 19. Usability Testing  Usability studies with cognitively impaired people are extremely rare  User testing is needed  There is no substitution for actual users with disabilities 19
  • 20. The Future: GPII  Global Public Inclusive Infrastructure (GPII)  Video about GPII: http://gpii.net/node/108 20
  • 22. References: Bergel, M., Chadwick-Dias, A., & Tullis, T. (2005). Leveraging Universal Design in a Financial Services Company. Accessibility and Computing, 82. Bodine, C., & Lewis, C. (2004). Rehabilitation Engineering Research Center (RERC) for the Advancement of Cognitive Technologies. Accessibility and Computing, 80. Cole, E. (2011). Lessons Learned and Challenges Discovered in Developing Cognitive Technology for Individuals with Brain Injury. Proceeding of CHI 2011. Czaja, S. J., Gregor, P., & Hanson, V. L. (2009). Introduction to the special issue on aging and information technology. ACM Trans. Access. Comput, 4. Fernando, S., Elliman, T., Money, A., & Lines, L. (2009). Age Related Cognitive Impairments and Diffusion of Assistive Web-Base Technologies. Universal Access in HCI, Part I, HCII 2009 (pp. 353-360). Springer-Verlag Berlin Heidelberg. 22
  • 23. References (contd.): Francik, E., Levine, S., Tremain, S., Roberts, E., & Bayha, B. (1999). Telecommunications Problems and Design Strategies for People with Cognitive Disabilities. Annotated Bibliography and Research Recommendations, World Institute on Disability. Gordon, W. A., & Nash, J. (2005). The Interface Between Cognitive Impairments and Access to Information Technology. Gregor, P., & Dickinson, A. (2006). Cognitive difficulties and access to information systems – an interaction design perspective. Hagood, K., Moore, T., Pierre, T., Messamer, P., Ramsberger, G., & Lewis, C. (2010). Naming Practice for People with Aphasia in a Mobile Web Application: Early User Experience. ASSETS: ACM Conference on Assistive Technologies, 273-274. Hanson, V. L. (2009). Cognition, Age, and Web Browsing. Universal Access in HCI, Part I, HCII 2009, (pp. 245-250). Springer-Verlag Berlin Heidelberg. 23
  • 24. References (contd.): Jansche, M., Feng, L., & Huenerfauth, M. (2010). Reading Difficulty in Adults with Intellectual Disabilities: Analysis with a Hierarchical Latent Trait Model. ASSETS’10,. Orlando, Florida, USA. Judson, A., & Nicolle, C. (2004). Internet accessibility for people who use augmentative and alternative communication. Conference Proceedings -- International Society for Augmentative & Alternative Communication, 181-186. Keates, S., Kozloski, J., & Varker, P. (2009). Cognitive Impairments, HCI and Daily Living. Universal Access in HCI, Part I, HCII 2009 (pp. 366-374). Springer-Verlag Berlin Heidelberg. Lepistö, A., & Ovaska, S. (2004). Usability evaluation involving participants with cognitive disabilities. NordiCHI '04. Tampere, Finland. Lewis, C. Cognitive and Learning Impairments. Lewis, C. (2008). Cognitive Disabilities. In The Universal Access Handbook. 24
  • 25. References (contd.): Lewis, C. (2006, May-June). HCI and Cognitive Disabilities. Interactions , pp. 14-15. Lewis, C. HCI for People with Cognitive Disabilities. Lewis, C. (2006). Simplicity in cognitive assistive technology: a framework and agenda for research. Univ Access Inf Soc (pp. 351-361). Springer-Verlag. Moffatt, K., & Davies, R. (2004). The Aphasia Project: Designing technology for and with individuals who have aphasia. Accessibility and Computing, 80, pp. 11-17. Poncelas, A., & Murphy, G. (2007). Accessible Information for People with Intellectual Disabilities: Do Symbols Really Help? Journal of Applied Research in Intellectual Disabilities. 20, pp. 466-474. BILD Publications. Poulson, D., & Nicolle, C. (2004). Making the Internet accessible for people with cognitive and communication Impairments. Universal Access in the Information Society, 3(1), 48-56. 25
  • 26. References (contd.): Redish, J. (., & Chisnell, D. (2004). Designing Web Sites for Older Adults: A Review of Recent Literature. AARP. Rowland, C. (2010). Accessibility: The Need for Champions and Awareness in Higher Education. Educause Review, 45(6), 12. Rowland, C. (2010). Transforming the Institution. Educause Review, 45(6), 14. Savidis, A., & Stephanidis, C. (2004). Developing Inclusive e-Learning and e- Entertainment to Effectively Accommodate Learning Difficulties., (pp. 42-54). Solheim, I. (2009). Adaptive User Interfaces: Benefit or Impediment for Lower- Literacy Users? Universal Access in HCI, Part II, HCII 2009 (pp. 758-765). Springer-Verlag Berlin Heidelberg. Summers, K., & Summers, M. (2005). Reading and Navigational Strategies of Web Users with Lower Literacy Skills. Proceedings of the American Society for Information Science and Technology, 42. 26
  • 27. References (contd.): Vigouroux, N., Rumeau, P., Vella, F., & Vellas, B. (2009). Studying Point-Select- Drag Interaction Techniques for Older People with Cognitive Impairment. Universal Access in HCI, Part I, HCII 2009 (pp. 422-428). Springer-Verlag Berlin Heidelberg. Walser, K., Quesenbery, W., & Swierenga, S. (2008). Designing for Cognitive Disabilities. UPA 2008 – The Many Faces of User Experience. Baltimore, Maryland, USA. WebAIM. (n.d.). Cognitive and Learning Disabilities Literature Review. Retrieved from WebAIM Web Accessibility in Mind: http://webaim.org/projects/steppingstones/litreviewsummary WebAIM. (n.d.). Steppingstones Project on Web Accessibility and Cognitive Disabilities in Education. Retrieved from WebAIM Web Accessibility in Mind: http://webaim.org/projects/steppingstones/steppingstones 27

Notes de l'éditeur

  1. Francik (1999)
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